Blur

The last two nights are a blur. Even though there has been minimal sleep, X continues to do well. He even had his entire feeding last night. That is only two nights without getting all his feedings. A record!! He is eating less than 100 calories, so we'll see how long it takes for him to start eating again. Hopefully not as long as usual.

We took him to the dr today. X has an ear infection again. I think it may be time to meet with ENT. He also lost a pound since Monday. That boy loses weight so quickly it's unbelievable. We are back to 38.8 pounds. I'm not too worried about it because 1) he has extra weight on him and 2) he managed this cold so well. The dr we saw today wasn't our family dr. He was pretty surprised that X receives 80-90% of his calories through the feeding tube. I felt a little sad at his reaction. It wasn't mean or inappropriate, but it made me remember that it isn't normal for a child to need a feeding tube to grow and be healthy.

Tonight X went to bed in his own bed. I am hoping/praying he stays there all night. I can't count the number of times I've had a good swift kick in the head the last few nights. That boy has quite a kick too. For anyone out there who thought I ever needed a good swift kick, consider it done.

N has the cold now and his asthma has been flaring up. Poor guy. I always feel so bad when he needs his nebulizer. This morning, at 6 am, while sitting on the couch with N and X, N asked me why God lets people get sick. Oh boy. He has asked this question many times, especially after X's hospitalizations and while my mother-in-law lived us when she had Alzheimer's and COPD.

What do I say? There's the typical answer "it's a broken world", which seems okay when you're talking about a cold or stomach flu. But it seems trite when talking about bigger stuff. I never feel like I have a great answer for him and I try to focus on how God helps us through the tough stuff and walks with us and how we are never alone. I don't know. He seemed content with my answer, then the three of us snuggled in bed and slept for a couple hours (the best part of my day).

Today went well. I am hoping we will get out tomorrow and enjoy the warm weather the weather-people are talking about.


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