X did a fantastic job at feeding therapy. He ate small bits of tortillas wrapped around avocado and black beans like it was nothing. He had never had black beans before and was a little hesitant for about 30 seconds, but then it was all systems go! We have come so far from a year ago. Whenever he would look at a new food he would gag, get cranky, leave the table and often have a meltdown. We couldn't get him to sit at the table with us and mealtimes were loud and stressful. Now, he runs to the table excitedly and asks, "what's for supper?!". There isn't anything he won't at least try. It's amazing.
Today I was talking to a new therapist who was observing his session and I was explaining all this to her when it hit me. He has come a looong way! Its easy to forget that when I am in the day to day stuff and dealing with the feeding tube. I am grateful for this reminder. I don't know how long X will need his feeding tube (nobody knows) but I do know he is improving and growing and eating, so I don't think it will be forever. It could be years I guess (but I really hope not).
There is no way he would have eaten anything like this a year ago.
I feel that when I start to lose sight of how well things are going, or when I am caught up in the frustrating stuff, God gently helps me see the bigger picture. For that I am grateful.
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