Holding Pattern

Well, Mr. X is still not eating as well as he should be. He goes in for his bimonthly height/weight check on Friday morning and I am dreading it.  He looks like he has lost weight and if he has lost a significant amount I'll have to call GI and possibly increase X back up to 3 tube feedings a day.  sigh  He will very disappointed and frustrated if he has to go back up to three feedings.

He has also thrown up his late evening feedings two nights in a row (one was at the rock climbing center and it ended up in the rubber mulch.  Craig was with him. Not sure how that one got cleaned up). Today I gave him his second feeding after lunch because he refused to eat saying he wasn't hungry (but he tolerated his feeding fine).  I feel like we are going backwards and it is all because of that stupid cold.  I wish we could figure out what happens with his gut whenever he gets sick.  It's frustrating for him and us.

X is still a little congested, so maybe he is still fighting this cold.  Who knows? He also has seasonal allergies, so they could be messing everything up as well.  Or maybe it is something completely unrelated that no one would ever think about of.  He has also had more meltdowns than usual, which is related to not getting enough calories, which makes for loud and exhausting days.  I know he also worries when he throws up, so I am sure the PTSD is involved as well.

That's about all that is going on around here.  Halloween is in a couple days so X is looking forward to that. He is going to be a rotisserie chicken and we finished his costume last night.  You have to use your imagination to see that it is a cooked chicken, but X is happy with it, so that is all that matters.

Even though we are still dealing with the effects of the cold, things are going pretty well.  The vomiting has me concerned because that isn't typical for X so far out from a cold.  It's hard not to panic and remember when he was hospitalized for 3 weeks for uncontrollable vomiting. That started with a virus as well.  Praying and hoping this situation doesn't turn into that and that he starts eating well again.   And that he doesn't need to go back to three feedings. The three feedings wouldn't be the end of the world, but it would suck.