This morning, X had his blood drawn to see if he is beginning puberty early. I don't know how long it will take to get the results back. Part of me wants them right away and part of me wants to wait a while. I'm almost dreading the results because if he isn't starting puberty early (this would be the best possible result) it means something weird is going on with his body which may mean more tests and possibly more specialists. If he is starting puberty early, well, that's just not good. There was talk of possibly MRI'ng his pineal gland. The blood work will tell us which direction to take.
X had to train in a new person at our clinic's lab today. The person who normally takes his blood moved to a different clinic (I almost cried when
I found out. She was amazing with X and found his vein on the first try every time. They had a good relationship and a system worked out).
The new person was not very talkative. X had no problem pointing out when she did something "wrong". When she had a hard time finding his vein, X said: " why is this taking you so long? They usually get this right away. This is taking longer than usual". When she started collecting his blood...X:" those vials are a lot bigger than they use. They use a lot smaller vials". When she removed the band around his arm after taking his blood, " ummm, they take that off before they are done taking my blood. They don't leave it on so long." He isn't snotty when he says this stuff. It is all very matter of fact. I just explained that X was a pro at blood draws and that he and the other technician had a system worked out. Nothing like starting out your day with a 6 year old telling you how to do your job.
We are also looking into cranio-sacral (spelling?) therapy as well as kinesiology for X. Cranio sacral therapy helps the sympathetic system calm down (responsible for flight or fight) so his body can rest which would help his adrenals. Kinesiology would help with adrenals. I think this could also help with the PTSD.
We do have great news regarding X's height and weight. He is now 3'10 &1/4 inches and 48.9 pounds. That is the most he has ever weighed and he was able to get to that point with only 2 tube feedings a day. He is eating a lot more on his own and actually feeling hungry. I am hearing the words, "Mom, I'm hungry" several times a day now. Unbelievable. (Of course I wrestle with the thought of, "well, of course he's hungry, he's probably starting puberty". Still struggling to just enjoy the moment)
Non-medical news:
This weekend was an incredible weekend for X. My brother, Uncle Terry was up with two of his friends to scout locations for a movie they will be filming in November. X found his people. These three guys "get" X and X adopted my brother's friends as his uncles. I've never seen X shine like he did this weekend and I've never seen him bond with anyone or become attached to anyone as quickly and as intensely as he did this weekend. It made my heart melt to see him in his element. This weekend was truly a gift to X. It was like X had known my brother's friends his entire life. My other brother and I were talking about it this morning and he made the point that Uncle Terry and his friends are entertainers and that is what X is, which explains it all. Last night X asked me how many uncles he had. I told him he had three. He corrected me and said, and I have Uncle Clayton and Uncle Noel. At the blood draw this morning, the technician (is that what they're called? You'd think I would know this after all of X's blood draws) commented on the early morning because X was yawning so much. I mentioned we had a very late night last night because it was my brother's last night in town. X then said, "yeah, and Uncle Terry brought his two best friends. They're my uncles".
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