X had his 5 year well child check up. He is in the 32nd percentile for height (42 inches) and the 65th percentile for weight (43.1 pounds). Who knew this could ever be?! Everything looks good and he is growing well. The tube feeding is working and he is getting nutrients from the formula. Now we just need to get him to eat on his own. His doctor was happy to see where X is at and described X as "a man of action". That is an accurate description.
We held off on vaccinations again. I am too scared to go there again and X continues to be extremely sensitive to everything ( ok, that's an exaggeration, but it feels that way), so I declined. Maybe next year.
N had some good news as well. He does not have Celiac and it doesn't look like he has any food allergies. (Can you hear my sigh of relief?). We had N tested a couple weeks ago because of some things I had noticed. It looks like it may be more of a IBS thing. We meet with the allergist next month to talk about his asthma, so I'll see what she thinks.
Hooray for simple and happy doctor appointments.
X continues to have bouts of nausea (I still can't find a pattern), but his eating picked up today (mainly in Christmas cookies and candy canes, but I do not care), so we are decreasing the amount of calories he gets at night by 200. Which means I need to be up in 2 hours to unhook him. We started hooking him up to his pump when he goes to bed instead of shocking his sleeping system by hooking him up at 11:00pm. It makes for interesting nights for us, but has stopped the throwing up at night, which makes it all worth it.
Hopefully he will keep up with the eating part. If he can eventually tolerate 4 blouses of 300 ml a day, we won't need to hook him up at night ( as long as he's eating enough), but even if he doesn't eat enough, he will only need to be hooked up for 2 hours at night. Currently, he is tolerating 3 blouses of 240ml. I get giddy thinking about that. The potential for a full night's sleep is so close.
X's volatility has decreased dramatically. Partly because he is getting his required calories and partly because I remembered to give him his vitamin D the past couple days, in my opinion. I had stopped giving it when X became ill and then spaced it out when he started feeling better.
Well, that's what's happening here. X is still recovering from the cold, but I think he is almost fully recovered, and medically he is looking well. I'm so very grateful for that.
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